It's been a really bad day...

Discussion in 'Adrian Wong' started by Adrian Wong, Oct 21, 2009.

  1. The_YongGrand

    The_YongGrand Just Started

    Cheers. Hope there's more bigger improvements. :D
     
  2. Adrian Wong

    Adrian Wong Da Boss Staff Member

    Yeah, I hope so too. :D
     
  3. Adrian Wong

    Adrian Wong Da Boss Staff Member

    Day 109

    I took Jenny to see her neurophysiology specialist, Dr. Mak, at the KL General Hospital on Friday. He ran another round of nerve conduction tests to see how well she has fared since the last time he tested her.

    The good news is that her right leg has improved, and is likely to recover to full strength. However, her left foot is still not responding. There was a complete absence of nerve conduction. It was as if the nerve was completely cut off. :(

    It is unfortunate as after the first 6 months, the chances of recovery is slim. She may well have to live with her foot drop for the rest of her life...

    However, she feels that the pain in her left foot is slowly improving. It isn't quite as painful as it was last month. Not sure if it's because it's actually improving, or it's because we switched from a mix of gabapentin (Neurontin) and celexocib (Celebrex) to gabapentin and tramadol (Tramal). But any good news is still good news.
     
  4. Adrian Wong

    Adrian Wong Da Boss Staff Member

    Day 120

    Thanks to my godsister, Liza, we hooked up with Joy Dowdy, a speech pathologist in Penang. This is the first time Jenny has had her speech problems analyzed by a professional like her.

    Her evaluation was that Jenny is doing really well even though she did not undergo any speech therapy. She obviously has a lot to work on but she can read well and most importantly, she is aware that she has this problem. Without self-awareness and the ability to read and understand, it would be much harder.

    So now the plan would be for her to work regularly (several times a week) with a speech therapist in PJ as well as at home. If we work on it real hard, she can correct most, if not all, of her speech problems.
     
  5. ZuePhok

    ZuePhok Just Started

    Happy CNY to u adrian and jenny!

    Keep fighting! :)
     
  6. belikethat

    belikethat Just Started

    man it been really rough for u. i cannot imagine it. hope all is well!
     
  7. The_YongGrand

    The_YongGrand Just Started

    Let's win this one! Hope Jenny speaks well and good! :thumb:
     
  8. Adrian Wong

    Adrian Wong Da Boss Staff Member

    Thanks, guys!

    It's going to take a while, but she's doing pretty okay, all things considered. :thumb:
     
  9. Trinity

    Trinity Little Kiki Staff Member

  10. The_YongGrand

    The_YongGrand Just Started

    Ooh! Quite a good news!

    In the meantime, I'll be studying some brain functions due to the sake of understanding pattern recognitions. Maybe I'll get some info about them. :thumb:
     
  11. Adrian Wong

    Adrian Wong Da Boss Staff Member

  12. The_YongGrand

    The_YongGrand Just Started

    Maybe karaoke sessions? :whistle: :twisted:
     
  13. Adrian Wong

    Adrian Wong Da Boss Staff Member

    Well, she's still not singing... but she's taking the time to read newspapers. Oh well, one step at a time!
     
  14. The_YongGrand

    The_YongGrand Just Started

    Hmm wow... great progress! So she can form sentences now?:thumb:
     
  15. Adrian Wong

    Adrian Wong Da Boss Staff Member

    Oh yes, she can.. but she gets some things wrong sometimes, and she can say things in reverse. For example, she will say "Go" when she means "Come"... or "Papa" when she means "Mama".
     
  16. The_YongGrand

    The_YongGrand Just Started

    Oh, that is still a progress anyway! Keep practising and she'll speak well! :thumb:

    Any other word confusions which you and she will tackle together?
     
  17. Adrian Wong

    Adrian Wong Da Boss Staff Member

    Oh, there are lots of them. That's the problem. :(
     
  18. Adrian Wong

    Adrian Wong Da Boss Staff Member

    Day 146

    Dr. Lau was super nice. He called us up on his own time to ask about her condition and even helped us arrange for an ENT consult. Thanks to him, I was able to take Jenny for that appointment this morning. Otherwise, I would normally have to wait another 2 weeks.

    They tested her and was worried she might have some neurological deficit that could impair her speech. So they did a nasopharyngeal scope. The good news is that her vocal cords are normal and there was no sign of any neurological deficit.

    That means she only needs to work on her speech therapy from now on. We managed to get an appointment for speech therapy later this month. They will start with an evaluation and proceed from the results. There's still a long way to go, but we are getting there. :thumb:
     
  19. The_YongGrand

    The_YongGrand Just Started

    I do believe that faith moves mountains. So don't give up! It may be a long way to go, but with the faith, eventually she will speak well! Keep us updated for more news!:hug:
     
  20. Ishtim

    Ishtim Super Moderator

    Indeed, good news! :hug:
     

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